My first born grandson was born with Treacher Collins. He had difficulty breathing and swallowing so had to be tube fed for a very long time. His hearing was also affected and we later learned he had additional learning difficulties, which were not associated with TCS.
My grandson is quite sensitive to how others perceive him. This has affected his confidence and sense of fitting in. Last year we had the opportunity to attend a retreat run by Jono and his team and it was so uplifting to see him and my daughter find a safe place to talk, share experiences with other families and feel a sense of belonging.
From April 2019 Nudge Boutique will be donating a portion of its profits to Love Me Love My Face Foundation, a charity that raises awareness and support for individuals and families with Treacher Collins Syndrome.
Treacher Collins is rare genetic condition that affects the development of bones and other tissues of the face. It is believed to affect around one in 10,000 babies. Symptoms range from mild to severe.Visit Great Ormond Street Hospital website for further details
Love Me, Love My Face Foundation
Co-founder Jono Lancaster was abandoned by his birth parents because he was born with Treacher Collins. It took Jono more than 20 years to accept the way he looked and start to love himself.
Aims of Foundation
1) The relief of people with Treacher Collins syndrome (TCS) and other craniofacial conditions and their families, in particular by the provision of information, advice and financial support for essential medical supplies/procedures.
2) To advance education and promote a wider knowledge and understanding of the problems of Treacher Collins syndrome (TCS) and other craniofacial conditions amongst the public.
Jono is a beautiful person inside and out and has a very giving and understanding heart. We all warmed to him, especially my grandson. Jono has an amazing passion for building up a person's worth and self esteem. He sees a person based on who they are and not on what they look like, which sits very deeply with me and the values behind Nudge Boutique.
If you wish to donate or learn more please visit:
Watch this video to learn more about the condition and his determination to change people's perceptions around children and adults who look different.